Have Your Say
Be Your Best
Phantomlimb.org wants to engage, educate and empower anyone directly or indirectly impacted on by amputation, and help to discover new therapies and products that are designed to help treat phantom pain.
WE WANT TO CHANGE THE WAY WE THINK ABOUT,
TALK ABOUT AND TREAT PHANTOM LIMB PAIN.
Not only do we want to expose new and exciting developments for the treatment of phantom limb pain, but we also want to contribute to the knowledge and research on offer. To do this we want to engage our readers with regular content and questionnaires to provides answers on new topics, with this research then going on to help provide the groundwork to develop new products, therapies and literature around phantom limb pain.
Phantomlimb.org has a number of key campaign messages focused on raising awareness of the problem of phantom limb pain, spreading the word about the latest science underpinning phantom pain treatment (both pain medication and drug free pain treatment), and passing on knowledge, experiences, therapies, products and recommendations as we seek a pain free society.
EDUCATE AND EMPOWER
Phantomlimb.org has a collection of resources with the aim of helping amputees to treat phantom pain. Whether it be a leg amputation, below knee amputation, amputated foot, toe amputee, and regardless of whether you’re experiencing pain, sensation, itching or anxiety, our aim is to provide all amputees with shared resources, knowledge and experiences to assist them through their journey and to a pain free lifestyle and back to living their best life.
HAVE YOUR SAY
The Phantom Limb Formula is a selection of resources co-created by people with persistent pain, healthcare professionals, pain scientists and communications experts. It aims to help you make sense of the science behind your pain, and supports you in balancing your own personal persistent pain equation.
Why is it needed?
PHANTOM LIMB PAIN AFFECTS
60% OF AMPUTEES
Equating to 1.5 million people, phantom limb pain is still an issue 5-10 years after amputation.
WHAT AM I EXPERIENCING? ...
There are many different experiences facing amputees, often with very discreet differences.
UNDERSTANDING PAIN IS IMPORTANT
How you think about your pain can change the way it feels and how you respond to it.
Phantomlimb.org has a catalogue of blogs, learning resources, research papers and interviews relating to amputees and phantom pain, phantom sensation, phantom itching and a host of therapies such as mirror box therapy, nerve stimulation, TENs, spinal chord stimulation, brain stimulation, and medicines.